PALLIATIVE CARE JOURNEY
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A mobile app ‘InspireD’ for people living with dementia is available. The app enables people living with a dementia and their carers to create a digital memory book to store personal photographs, videos and music. The book can help stimulate conversations and provide opportunities for sharing experiences, sustaining memories and maintaining relationships.
The DemTalk project was facilitated by the Alzheimer’s Society in the UK and involved tapping into the expertise and real-life experiences of experts, family members and people living with dementia.
This series of easy-to-follow film guides should help when you’re looking after a friend or relative at home. The written transcripts have also been included for reference.
The Open Dementia e-learning Programme is aimed at anyone who comes into contact with someone with dementia and provides a general introduction to the disease and the experience of living with it. Please note these courses are provided free of charge on an ‘as seen’ basis.
The Think Ahead form aims to guide you in thinking about, discussing, and recording your preferences regarding all aspects of end of life. It encourages you to ensure that those closest to you are aware of these preferences so that, should a time come when you are unable to express them yourself, your wishes will be clear to those caring for you or managing your affairs.
Children who are shielded from the truth are likely to worry, rely on overheard bits of conversation, or make up something in order to make sense of the unusual behaviours they’re observing. Many experts who work with children and youth believe that young people are better able to cope with situations if they know what is happening and feel comfortable asking questions.
When you have a serious illness there are things to consider. This could be for you or for those around you. You may want to think about your quality of life. What is important now? Whether you continue to work, how things are likely to change and how you can prepare for them is important. There is information here that can help in making informed choices.