PALLIATIVE CARE JOURNEY
Additional Resources
To view all publications on this website and not only those related to Care please visit the Helpful Documents area: Helpful Documents
HEALTH AND SOCIAL CARE BOARD
A mobile app ‘InspireD’ for people living with dementia is available. The app enables people living with a dementia and their carers to create a digital memory book to store personal photographs, videos and music. The book can help stimulate conversations and provide opportunities for sharing experiences, sustaining memories and maintaining relationships.
Irish Hospice Foundation
Caring for someone, nearing end of life, at home during the COVID-19 crisis
DEMTALK
The DemTalk project was facilitated by the Alzheimer’s Society in the UK and involved tapping into the expertise and real-life experiences of experts, family members and people living with dementia.
MARIE CURIE CARING FOR SOMEONE WITH A TERMINAL ILLNESS
This series of easy-to-follow film guides should help when you’re looking after a friend or relative at home. The written transcripts have also been included for reference.
SCIE
The Open Dementia e-learning Programme is aimed at anyone who comes into contact with someone with dementia and provides a general introduction to the disease and the experience of living with it. Please note these courses are provided free of charge on an ‘as seen’ basis.
THINK AHEAD
The Think Ahead form aims to guide you in thinking about, discussing, and recording your preferences regarding all aspects of end of life. It encourages you to ensure that those closest to you are aware of these preferences so that, should a time come when you are unable to express them yourself, your wishes will be clear to those caring for you or managing your affairs.
TALKING WITH CHILDREN AND YOUTH ABOUT SERIOUS ILLNESS
Children who are shielded from the truth are likely to worry, rely on overheard bits of conversation, or make up something in order to make sense of the unusual behaviours they’re observing. Many experts who work with children and youth believe that young people are better able to cope with situations if they know what is happening and feel comfortable asking questions.
LIVING WITH ILLNESS
When you have a serious illness there are things to consider. This could be for you or for those around you. You may want to think about your quality of life. What is important now? Whether you continue to work, how things are likely to change and how you can prepare for them is important. There is information here that can help in making informed choices.
