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PALLIATIVE CARE JOURNEY
Final Days Downloads

Caring for someone at home who is nearing the end of life - Irish Hospice Foundation
Much of the information here has been adapted from the booklet, When someone you care about is dying in hospital – What to expect. It contains information about the physical changes that happen as a person is dying. You can find it on our website www.hospicefoundation.ie.

When someone you care about is dying in a nursing home - What to expect - Irish Hospice Foundation
If someone you care about is dying in a nursing home, this information may help you know what to expect. You may be worried about many things, including COVID-19.

When someone you care about is dying in hospital: What to expect booklet launched - Irish Hospice Foundation
Irish Hospice Foundation’s information booklet, When someone you care about is dying in hospital – What to expect. If someone you care about is dying, this booklet may help you to know what to expect in the last days and hours of their life
Being with someone when they die (UK)
Being with someone you love at the point of their death is a profound experience. Nonetheless, you may find the anticipation emotionally and mentally exhausting. At times you may fervently wish for it to be over. And then you may feel guilty for thinking like this. But it is a normal and understandable response to a very stressful situation.

End of Life Care for People with a Learning Disability (UK)
This guide is the outcome of a two-year project in North Staffordshire to support individuals with a learning disability, their family and carers through their journey to the end of their life. The guide was written based on the authors’ experiences throughout the project, and the contents dictated by the outcome of dialogue with parents, carers and health and social care professionals.
NICE Guidelines - Care of dying adults in the last days of life (UK)
Providing care for people who are dying, and supporting the people who are important to them, are profoundly important. This link to information for the public describes the care that people should receive in the last 2 to 3 days of their life, as set out in the UK National Institute for Health and Care Excellence (NICE) guideline on care of dying adults in the last days of life.
TALKING ABOUT DEATH AND DYING
In this section you will find practical guidance, information and resources on: how to say goodbye; the importance of good listening skills; and what the dying may experience as death approaches. There is also guidance on talking to children and young adults, and practical guidance on how to break bad news.
TALKING WITH CHILDREN ABOUT DYING
What should you tell children about death? At some time or other, all those who care for children will be faced with questions about dying. Children deserve honest answers, but as adults, we get worried about saying the wrong thing. What’s the right approach?
PALLIATIVE CARE JOURNEY
Final Days Downloads
When someone you care about is dying in hospital: What to expect booklet launched (UK)
Irish Hospice Foundation’s information booklet, When someone you care about is dying in hospital – What to expect. If someone you care about is dying, this booklet may help you to know what to expect in the last days and hours of their life
Being with someone when they die (UK)
Being with someone you love at the point of their death is a profound experience. Nonetheless, you may find the anticipation emotionally and mentally exhausting. At times you may fervently wish for it to be over. And then you may feel guilty for thinking like this. But it is a normal and understandable response to a very stressful situation.

End of Life Care for People with a Learning Disability (UK)
This guide is the outcome of a two-year project in North Staffordshire to support individuals with a learning disability, their family and carers through their journey to the end of their life. The guide was written based on the authors’ experiences throughout the project, and the contents dictated by the outcome of dialogue with parents, carers and health and social care professionals.
NICE Guidelines - Care of dying adults in the last days of life (UK)
Providing care for people who are dying, and supporting the people who are important to them, are profoundly important. This link to information for the public describes the care that people should receive in the last 2 to 3 days of their life, as set out in the UK National Institute for Health and Care Excellence (NICE) guideline on care of dying adults in the last days of life.
TALKING ABOUT DEATH AND DYING
In this section you will find practical guidance, information and resources on: how to say goodbye; the importance of good listening skills; and what the dying may experience as death approaches. There is also guidance on talking to children and young adults, and practical guidance on how to break bad news.
TALKING WITH CHILDREN ABOUT DYING
What should you tell children about death? At some time or other, all those who care for children will be faced with questions about dying. Children deserve honest answers, but as adults, we get worried about saying the wrong thing. What’s the right approach?
End of Life Care Map (IRE)
This map is designed for staff involved in any aspect of end-of-life care. It is intended to provide practical advice and prompts along the end-of-life journey. It is not designed to be read as a stand alone document, or to be prescriptive on an individual patient’s care, rather it provides a set of key considerations for staff in end-of-life care.
