Neurological Organisations
Alzheimer Society of Ireland
The Alzheimer Society of Ireland with support from Irish Hospice Foundation developed a brochure which provides information and practical advice to support people with dementia in making decisions about what is important to them now and into the future.
Dementia (including Alzheimer's)
Republic of Ireland
Alzheimer Society of Ireland
The Alzheimer Society of Ireland works across the country in the heart of local communities providing dementia specific services and supports and advocating for the rights and needs of all people living with dementia and their carers.
Website: http://www.alzheimer.ie/
Feature: Helpline
Living Well with Dementia
Living Well with Dementia compromises of 4 pilot projects, supported by Genio Trust. They aim to develop new services and supports for people affected by dementia. These projects, representing 4 different geographical locations, are identifying, mobilising and developing community-based supports with the aim of enabling people with dementia to remain at home living full lives.
Website: http://livingwellwithdementia.ie/
Dementia Services Information and Development Centre (DSiDC)
The Dementia Services Information and Development Centre (DSiDC), established in 1998, is a national centre for excellence in dementia and is committed to best practice in all aspects of dementia care. Our vision is of a society where the civil and legal rights of people with dementia are fully respected and they are able to participate in the making of all decisions that affect them without discrimination or prejudice.
Website: http://dementia.ie/
Northern Ireland
Alzheimer’s Society (NI)
Alzheimer’s Society NI is part of the UK charity leading in support and research for people with dementia. They are passionate about helping anyone affected by dementia get the most out of life and stay connected to the people who matter most.
Website: https://www.alzheimers.org.uk/about-us/who-we-are/alzheimers-society-northern-ireland
The website also provides a list of support groups and activities of relevance to people within Northern Ireland which is directly accessible here
DemTalk
The DemTalk project was facilitated by the Alzheimer’s Society and involved tapping into the expertise and real-life experiences of experts, family members and people living with dementia. DemTalk is a free, web-based toolkit to help improve communication with people with dementia.
Website DemTalk | DemTalk | Newcastle University
SCIE – Dementia awareness e-learning course
The Open Dementia e-learning Programme is aimed at anyone who comes into contact with someone with dementia and provides a general introduction to the disease and the experience of living with it. Please note these courses are provided free of charge on an ‘as seen’ basis.
Website: Dementia awareness e-learning course
General Neurological
Republic of Ireland
Neurological Alliance of Ireland
Established in 1996, The Neurological Alliance of Ireland is recognised as a valuable source of info for people in Ireland with neurological conditions, and their families. It is an umbrella organisation that represents over 30 nonprofits working with conditions in this area, including stroke, migraine, epilepsy, acquired brain
Website: http://www.nai.ie/
Huntington's Disease
Republic of Ireland
Huntington’s Disease Association of Ireland
HDAI is a national voluntary organisation established by HD family members. It provides consultation, information and individualised support to those diagnosed with Huntington’s Disease, those at risk, family members and health and social care professionals. Confidentiality is guaranteed.
Website: http://www.huntingtons.ie/
Northern Ireland
Huntington’s Disease Northern Ireland
The Huntington’s Disease Association Northern Ireland (HDANI) was originally set up in 1976 by a group of family members who, in the absence of other accessible resources, desperately needed to provide some peer advice and mutual support for other families in Northern Ireland living with HD. Today, HDANI has four full time Family Support Workers who provide disease specific information, practical and emotional support and help families navigate health and social care services. They also provide access to free counselling, holistic therapies and opportunities to connect with other families. HDANI offer training and resources to health and social care professionals and other service providers.
Website: http://hdani.org.uk/
Motor Neurone Disease
Republic of Ireland
Irish Motor Neurone Disease Association
The Irish Motor Neurone Disease Association (IMNDA) is the only organisation of its kind providing care and support to people with Motor Neurone Disease, their families, friends and carers. This year we are marking 30 years of caring for people with MND and we have been providing these services since the 1st May 1985
Website: http://imnda.ie/
Feature: Helpline
Northern Ireland
Motor Neurone Disease Association NI
The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning. This is a membership organisation with nearly 8,000 members forming a national and local network that offers information and support alongside fighting for improved services.
Website: http://www.mndani.com/
Feature: Helpline – Forum
The British Motor Neurone Disease Association (MNDA) has published the comprehensive guide ‘End of life: A guide for people with motor neurone disease‘ for people with MND to plan ahead and communicate their end-of-life decisions to family and professional.
Multiple Sclerosis
Republic of Ireland
MS Ireland
MS Ireland has a vision of Irish society where all people affected by MS live positive and active lives in the community. Their principal objectives are to facilitate people with MS to live with dignity and participate in the community, to provide support for the families and carers of people with MS, to promote scientific research in this area, to provide info about MS to those who need it.
Website: http://ms-society.ie/
Feature: Helpline
Northern Ireland
MS Society NI
This is the Northern Ireland’s leading charity dedicated to beating MS. They provide support and services to people affected by MS including advice, counselling, and physiotherapy. They also work to raise awareness of MS and to make MS a priority at political level.
Website: http://www.mssociety.org.uk/
Feature: Helpline – Forum
Myasthenia Gravis
All Ireland
MyAware
MyAware is the new name for the Myasthenia Gravis Association. They support people with myasthenia and their families, increase public and medical awareness of the condition and raise funds for research and support staff. They provide info, advice, support, and free access to their resource centre.
Website: http://www.myaware.ie/
Neurofibromatosis
Republic of Ireland
Neurofibromatosis Association of Ireland (NF Ireland)
The Neurofibromatosis Association of Ireland delivers essential services to families affected by Neurofibromatosis. Currently their main focus is on the development of services at the Neurofibromatosis clinic at Our Lady’s Hospital. They also provide a free counselling service which can make a real difference to those diagnosed with this genetic condition.
Website: http://www.nfaireland.ie/
Feature: Helpline
Parkinson's Disease
Republic of Ireland
Parkinson’s Association of Ireland
The Parkinson’s Association of Ireland is a charity, based in Dublin with branches throughout the country. Their aim is to assist people with Parkinson’s, their families and carers, health professionals and other interested people by offering support, a listening ear and information on any aspect of living with Parkinson’s.
Website: http://www.parkinsons.ie
Feature: Forum
Nurse Helpline: Parkinson’s Association of Ireland Disease Nurse Specialist is available for phone support Monday to Friday – 9am to 5pm contact
1 800 359 359
Move4Parkinson’s
Move4Parkinson’s was founded by Margaret Mullarney who was diagnosed with Parkinson’s. Margaret discovered there is a huge range of activities that people with Parkinson’s (PWP’s) can undertake to improve their quality of life. Their services work to improve PWPs’ understanding of their illness, improve active self-management, and reduce symptoms. They also aim to serve the families and carers of PWP’s to build a supportive community for everyone affected by Parkinson’s.
Website: http://www.move4parkinsons.com/
Northern Ireland
Parkinson’s UK (NI Branch)
Parkinson’s UK offer friendship and support to everyone living with Parkinson’s, their families and carers via our network of local groups across the UK. Their Northern Ireland team provides a range of support and information services for people with Parkinson’s, health and social care professionals, carers, and individuals or groups who may want to volunteer or support their work.
Website: http://www.parkinsons.org.uk/
Feature: Helpline – Forum
Parkinson’s UK have a Northern Ireland facebook page which can be found at: Facebook follow for updates on events and activities happening in your area.
The Irish Hospice Foundation have developed the following publication for people with advancing neurological conditions:
Planning for the Future: Information for people who have an advancing neurological illness