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Information and Support

Finding relevant information can be overwhelming. Below you will find some key useful links relative to Republic of Ireland and Northern Ireland to help you find relevant information and support. You can also view our “Links to Services” page by clicking here 

Republic of Ireland

The Palliative Hub – Carers – This website provides core information that is targeted at family members or friends who are providing support to a person who needs palliative care. These people are often referred to as ‘carers’. Throughout this website we will refer to you as a ‘carer’ and the person requiring palliative care as your ‘relative’ (even though they may in fact be a friend). The aim of this website is to help you to understand how palliative care may assist your relative and also provides advice on how you can best support him/her whilst also looking after yourself.

Irish Hospice Foundation – Irish Hospice Foundation (IHF) is a national charity that addresses dying, death and bereavement in Ireland. Our vision is an Ireland where people facing end of life or bereavement, and those who care for them, are provided with the care and support that they need.  

Since its inception, IHF has grown to develop programmes in education, research and bereavement services. The IHF are bringing hospice principles into acute hospitals and residential care settings and are working to extend palliative care to non-malignant conditions.  

They also promote discussion of a broad range of issues related to dying, death and bereavement, in order to identify what matters most to Irish people at the end of life and how best to address their concerns. 

Website: http://hospicefoundation.ie/ 

HSE National Clinical Programme for Palliative Care – The aim of the National Clinical Programme for Palliative Care is to ensure that patients with life-limiting conditions and families can easily access a level of palliative care service that is appropriate to their needs regardless of care setting or diagnosis.
Website: https://www.hse.ie/eng/about/who/cspd/ncps/palliative-care/


Northern Ireland

Compassionate Communities NI – Compassionate Communities NI takes a public health approach to palliative and end of life care. Their aim is to improve death, dying and loss experiences for everyone in Northern Ireland by empowering people and communities to make positive choices about end of life through leadership, influence, capacity building and training. They promote the importance of social support and community involvement in achieving wellbeing up to and including end of life through kindness, compassion, active citizenship and social inclusion.
Website: https://compassionatecommunitiesni.com/

Marie Curie – Marie Curie provides provide care and support for more than 40,000 people living with a terminal illness and their families in the UK each year.
Their nurses work night and day, in people’s homes across the UK, providing hands-on care and vital emotional support. Their hospices offer specialist round-the-clock care. And they help people throughout their illness by giving practical information, support from trained volunteers and being there when someone wants to talk.
Website: https://www.mariecurie.org.uk/
Feature: Helpline – Forum

Palliative Care in Partnership (PCIP) – The Palliative Care in Partnership (PCiP) programme was officially formed in Northern Ireland in September 2016, bringing together previous structures and workstreams from Living Matters, Dying Matters (2010) and the Transforming Your Palliative and End of Life Care programme (2013 – 2016) and taking cognisance of recommendations from the RQIA Review of Living Matters, Dying Matters (2016) and the key findings of the Let’s Talk  About Palliative Care Survey (2016).

The Palliative Care in Partnership programme is based on the following principles:

  • One structure, one regional work plan and one direction for palliative care in Northern Ireland;
  • Good palliative care is everyone’s business – no one service, professional, organisation or person can provide everything required to support a person at the end of their life;
  • Palliative care is not just for cancer;
  • Palliative care is not just about the last weeks or days of life;
  • Palliative care supports the person with palliative care needs and improves the experience of those important to them; and
  • Good palliative care is about supporting quality of life until the end

Website: https://pcip.hscni.net/


UK

Dying Matters – Hospice UK’s Dying Matters campaign is working with you to create an open culture in which we’re comfortable talking about death, dying and grief.
Website: http://www.dyingmatters.org/

Healthtalk.org – healthtalk.org comes from a charity called DIPEx and provides free, reliable information about health issues, by sharing people’s real-life experiences. You can watch people sharing their stories about cancer, autism, motor-neurone disease, pregnancy, drugs, depression and much more:
Webpage re Living with Dying: https://healthtalk.org/introduction/living-dying/.
Website: https://healthtalk.org/about/healthtalk-org/

Hospice UK – Hospice UK’s mission is to promote and protect hospice care for all who need it, for now and forever. As the UK national champion for hospices, Hospice UK fights to make sure hospice care is there for everyone, from every background. They fight to make sure hospices are able to deliver the best, most personalised care. They fight to make sure hospices can thrive – today and into the future.
Website: http://www.hospiceuk.org/

Sue Ryder (UK) – Sue Ryder provides incredible hospice and neurological care for people facing a frightening, life changing diagnosis. We do whatever we can to be a safety net for our patients and their loved ones at the most difficult time of their lives. We see the person, not the condition.
Website: http://www.sueryder.org/
Feature: Forum

International

CareSearch – CareSearch is an online resource designed to help those needing relevant and trustworthy information and resources about palliative care. The website has been funded by the Australian Government’s Department of Health. There are sections designed specifically for health professionals and others for patients, for carers, and for family and friends.
Website: http://www.caresearch.com.au/caresearch

Virtual Hospice – The Canadian Virtual Hospice provides support and personalised information about palliative and end-of-life care to patients, family members, health care providers, researchers and educators.
Website: http://www.virtualhospice.ca/
Feature: Forum