RESOURCES
Useful Links
Republic of Ireland
Irish Hospice Foundation
The Irish Hospice Foundation was set up in 1986 to fund and develop specific hospice services. Since then their work has expanded to address the needs of people dying in hospitals, at home and in other care settings. They work to provide equity in access to palliative care services for all patients with life limiting illness. They also promote discussion of a broad range of issues related to dying, death and bereavement, in order to identify what matters most to Irish people at the end of life and how best to address their concerns.
Website: http://hospicefoundation.ie/
Forum on End-of-Life in Ireland
The Forum on End-of-Life in Ireland is an Irish Hospice Foundation initiative aimed awareness raising, planning and promoting public debate on issues relating to death, dying and bereavement in Ireland. During 2009 it engaged with the public on end-of-life issues to find out what people in Ireland believed about dying, death and bereavement. The National Council of the Forum on End of Life is now taking on the work and vision of the Forum.
Website: http://hospicefoundation.ie/programmes/public-awareness/forum-on-end-of-…
UK
Compassionate Communities NI
Compassionate Communities NI takes a public health approach to palliative and end of life care. Their aim is to improve death, dying and loss experiences for everyone in Northern Ireland by empowering people and communities to make positive choices about end of life through leadership, influence, capacity building and training. They promote the importance of social support and community involvement in achieving wellbeing up to and including end of life through kindness, compassion, active citizenship and social inclusion.
Website: https://compassionatecommunitiesni.com/
Dying Matters
The National Council for Palliative Care (NCPC) set up the Dying Matters Coalition to promote public awareness of dying, death and bereavement. It is chaired by Professor Mayur Lakhani, who is a practising GP. The work of the Coalition is supported by NCPC’s Board of Trustees.
Website: http://www.dyingmatters.org/
Healthtalk.org
healthtalk.org comes from a unique partnership between a charity called DIPEx and The Health Experiences Research Group or ‘HERG’ at The University of Oxford’s Nuffield Department of Primary Care. healthtalk.org provides free, reliable information about health issues, by sharing people’s real-life experiences. You can watch people sharing their stories about cancer, autism, motor-neurone disease, pregnancy, drugs, depression and much more. The website provides information on 90 topics including on a range of life limiting conditions, it also provides information on:
Hospice UK
Hospice UK, formerly Help the Hospices, works to support the development of hospice care in the UK and internationally. By supporting hospice people, championing the voice of hospice care and promoting clinical excellence, they help hospice care providers to deliver the highest quality of care to people with life-limiting or terminal conditions and their families.
Website: http://www.hospiceuk.org/
Marie Curie
Marie Curie provides provide care and support for more than 40,000 people living with a terminal illness and their families in the UK each year.
Their nurses work night and day, in people’s homes across the UK, providing hands-on care and vital emotional support. Their hospices offer specialist round-the-clock care. And they help people throughout their illness by giving practical information, support from trained volunteers and being there when someone wants to talk.
Website: https://www.mariecurie.org.uk/
Feature: Helpline – Forum
Sue Ryder (UK)
We provide incredible hospice and neurological care for people facing a frightening, life changing diagnosis. We do whatever we can to be a safety net for our patients and their loved ones at the most difficult time of their lives. We see the person, not the condition.
Website: http://www.sueryder.org/
Feature: Forum
International
CareSearch
CareSearch is an online resource designed to help those needing relevant and trustworthy information and resources about palliative care. The website has been funded by the Australian Government’s Department of Health. There are sections designed specifically for health professionals and others for patients, for carers, and for family and friends.
Website: http://www.caresearch.com.au/caresearch
Virtual Hospice
The Canadian Virtual Hospice provides support and personalized information about palliative and end-of-life care to patients, family members, health care providers, researchers and educators.
Website: http://www.virtualhospice.ca/
Feature: Forum
